Paralyzed men have new range of options

By CARLA K. JOHNSON Associated Press

Chicago - In the weeks following the car accident that left him paralyzed below the waist, Geoff Luther was haunted by worries that he'd lost the chance to be a father.

"It was some of the stuff I was thinking about the most," said Luther. "What about having children? What about getting married? Can you naturally conceive a family?"

His questions are shared by thousands of young men each year who suffer paralyzing spinal injuries. But many may give up hope - or undergo unnecessary, invasive procedures - because their doctors don't know about simple ways to help them.

Luther was 28 and working for his father's tool and die company in Milwaukee in 1991 when his car rolled over on the icy road after a deer hunting trip.

After the accident, he grew closer to a woman he had met while both were dating other people.

Tammy Russell, who thought Luther was "arrogant" before the accident, found herself drawn to a man who had changed physically and emotionally.

She fell in love and in 1993 married the man who showed her a determined spirit and a growing ability to appreciate life.

"If I want him to do something, I tell him he can't do it," she said.

Doctors at the Rehabilitation Institute of Chicago told Geoff, 43, that most men with spinal cord injuries can father children. But the treatments that allowed him and Tammy, 39, to conceive aren't offered to many injured men.

Instead, some fertility doctors jump immediately to expensive, invasive procedures, such as surgically extracting sperm from the testes.

The Luthers, who live in Oak Brook, Ill., avoided that procedure.

Nonetheless, it took six years and tens of thousands of dollars, some contributed by his father, before they succeeded. But after a tour through most of the methods and procedures of rehab fertility medicine, the Luthers conceived son, Trent, now 6, and daughter Kayla, now 3.

"We went through it all," Tammy said.

Their story illustrates how determined couples can conceive with guidance from medical professionals who are well-versed in techniques that work for paralyzed men.

No smoking ears

What helped in Geoff's case was a device that triggers ejaculation with a low-voltage impulse of electricity, a procedure borrowed from animal husbandry and developed for use in humans by physician Carol J. Bennett and her colleagues at the University of Michigan's urology department.

Geoff remembers asking his doctor: "How will you know when you have it turned up high enough? Will my ears start smoking or what?"

The low-voltage impulse worked for Geoff, but his sperm quality was low.

A single sperm was injected into one of Tammy's eggs to create an embryo. That embryo was implanted in the womb and Trent was conceived. A few years later, Kayla was conceived the same way.

"I loved being pregnant," Tammy said.

Unfortunately, many fertility centers don't know the basics.

Nancy Brackett, a researcher at the Miami Project to Cure Paralysis, surveyed more than 100 fertility centers and discovered that 28% don't offer two simple techniques that rehab experts have used successfully for years and that work for 95% of Paraplegic and quadriplegic men.

Brackett published her findings in the October issue of Fertility and Sterility, a journal read by reproductive medicine doctors, and now she has made the issue her soapbox.

Most men with spinal cord injuries have varying degrees of difficulty with erection and ejaculation.

Medications like Viagra help some.

Others need only a special vibrator to collect sperm; insemination of their partners can be done with a syringe in private, at home.

Paul and Shelly LeVasseur of Winfield, Ill., felt lucky they could conceive at home.

"There are times when it is rather clinical and there are times when it is very romantic," Paul LeVasseur said. Their children are Ben, 6, and Danielle, 2, and they are trying for another.

Brackett wants doctors to try simple solutions before assuming they must use surgical means to retrieve sperm from the testes of injured men.

Education a key

In Brackett's survey, some doctors said they lacked training or equipment, or were unfamiliar with the methods.

"If we forget these simple things, it's almost like going backward," Brackett said. "It does a disservice to these patients."

Miami Project researchers are also studying compounds in the semen of injured men that have a poisonous effect on sperm.

The research could lead to a drug that would counteract the effect, Brackett said.

Of the 11,000 spinal cord injuries annually in the United States, 80% are among men between the ages of 16 and 45 - the prime reproductive years.

Rehabilitation Institute nurse practitioner Diane Rowles, who teaches a class called Sexuality and Fertility to patients, said sex is "a very private topic, a very personal topic."

If medical staff members don't educate spine injury patients about sex and fertility, they may assume the worst: that they're not able to have a sex life or father children.

"It's a big thing. You just can't leave it out," Rowles said. "They need to learn about it, too."

The Luthers' children haven't asked where babies come from. Tammy said someday, if they ask, she'll tell them about many different ways children come into the world, from adoption to reproduction with medical help.

Geoff said he doesn't know what he would say. "I still haven't had that talk with my mom and dad, so I'm not sure," he said.

For men with spinal cord injuries who want to be fathers, Geoff offers this advice: "Search out the best doctors, or you can waste a lot of time and resources."

Miami Project to Cure Paralysis: www.miamiproject.miami.edu/
Rehabilitation Institute of Chicago: www.ric.org/