Nelda and Gerry Winchester didn't know whether their daughter was alive
as they battled early-morning traffic to get to Parkland Memorial
Hospital in Dallas.
Mr. Winchester bounded out of the car before his wife could park.
Ms. Winchester, who was with friends and a passenger in her own car at
the time of the accident, barely survived. She did not return home for
nearly five months.
Early on, she could only shrug her
shoulders. Doctors told the family that, with surgery, she would have
use of her arms and wrists.
"They couldn't guarantee
anything else, and couldn't guarantee she'd ever walk again," Mrs.
Winchester said. "We were totally distraught over this. We were saying,
'She will walk again. You just don't know.' "
But as she started Physical Therapy, Ms. Winchester had her doubts.
"I just thought I wouldn't walk again they were so persistent about it."
The family then learned from other patients about stem cells, and soon they had Russia in their sights.
Stem cells are the body's building blocks. Scientists believe they can
be coaxed to develop into specific cell types that can be used to
replace damaged tissue and treat conditions such as diabetes,
Parkinson's disease and spinal cord injuries. Experiments with
paralyzed mice have shown that stem cells can help them walk again.
But the science behind repairing spinal cord injuries is extremely
complex, said Robert H. Miller of the National Center for Regenerative
Medicine.
"Stem cell therapies are so powerful, but the
cells can only do what the Environment tells them to do," he said.
No evidence proves that simply injecting stem cells into a patient can
heal the spinal cord, Dr. Miller said, and he worries that doing so
would create more problems, including tumor growth.
Spinal cord injury patients are a close-knit network, thanks to
Internet chat groups and message boards, said Dr. Steven Hinderer,
medical director of the Center for Spinal Cord Injury Recovery at
Rehabilitation Institute of Michigan.
About a third of
the patients in his program have sought care abroad. He said the number
has remained stable, though the countries that patients visit have
varied. Many now are headed to Russia.
Dr. Hinderer said
he does not endorse any procedure but keeps an open mind. He talks with
patients about the risks and shares what information he has.
"People who are really negative about this whole thing will talk about
how desperate [patients] are and anxious for recovery," Dr. Hinderer
said. "They're also very well-informed."
Still, patients
do not always listen when he steers them from procedures that don't
offer much hope for improvement or that could be dangerous.
One patient traveled to Ecuador for surgery against his advice and died from complications.
"You're dealing with people who have been told to expect nothing," he
said. "What do I really have to risk here, so why not?"
He said he has had patients whose conditions have worsened slightly but
said many others have recorded improvements in sensations or
circulation.
As Americans get more comfortable with the
idea of going abroad for common surgeries to save money, more are
seeking what they can't find here in hopes of improving – or
saving – their lives, said Stephanie Sulger, director of
international medical services for Medical Tours International.
"It moves fast, this industry," she said. Health providers abroad are
eager to respond. "They think, 'Look at all these sick, rich patients.'
"
She said her business, which has grown from a dozen
patients in 2002 to about 300 a year now, gets several calls a week
about stem cell therapies. The vast majority of current patients are
going abroad for surgeries approved in the United States, but she
expects that to change over time.