We need to provide a clear picture of the actual needs in the affected states and in the receiving states. Please send me the following information ASAP so we can make our case for Disability specialists to be put into place to address disability specific issues from an advocacy perspective to address both medical and non-medical needs. I need as much information as possible in the following categories:
Location (town, state)
Current living situation
Disability
Immediate needs (medicine, food, water, sterile catheters, DME – wheelchairs, airmattresses, seat cushions, for example)
Additional needs (accessible housing, special education services, for example)
Age
Single or family/companions
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If you are a CIL or other service provider, what is your current situation?
What staffing and other resources (computers, cell/SAT phones for example) are needed?
Address, phone, email
Anything else that will help decision makers to address the additional disability specific needs of survivors ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Please send to mroth@spinalcord.org
You can reach me at 301 990-6559.
Marcie Roth
Executive Director/CEO
National Spinal Cord Injury Association
6701 Democracy Blvd Suite 300-9
Bethesda, MD 20817
(301) 717-7447 (Direct)
(301) 214-4006 (VM)
(301) 963-1265 (Fax)
(800) 962-9639 (Helpline)
http://www.spinalcord.org