Mandakini Gahlot
New Delhi, August 29:* Nekram Upadhyay is 34, suffers from polio, walks with a crutch, and has won the prestigious Ford Fellowship.
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Dr Tomasz Tasiemski lost sensation in limbs after an accident, is
wheelchair-bound, and the father of two is now a professor at the
Institute of Rehabilitation back in Poland.
Disabled?
Forget it; they now assists others. To lead a self-dependent life. The
conference room at the Indian Spinal Injuries Centre is packed with
wheelchair-bound individuals who have come to attend the active
rehabilitation centre.
“In
the West, active rehabilitation is an integral part of treatment after
physiotherapy. It’s essential to make people realise that they
can live just as well despite their Disability,” says Jyoti
Vidhiani, the 2005 recipient of Heinz Fellowship for rehabilitation
counselling.
Patients,
young and old, crowd around Dr Tasiemski as he demonstrates daily
living skills such as moving from a chair to the bed, or moving past
obstacles such as stairs. Twenty-three-year-old Ashustosh Upadhyay
observes carefully as Dr Tasiemski teaches them simple exercises which
can be performed without anybody’s assistance.
“For
the disabled, it’s essential to learn to be self dependent as it
gives them a reason to live,” says Nekram. The training does not
stop at teaching essential wheelchair skills but extends to wheelchair
games like table tennis and football, followed by Murderball, a
documentary on wheelchair rugby.
An
essential part of the active rehabilitation training will be to burst
some myths about spinal cord injuries. “In India when someone is
wheelchair bound, it is assumed that they can no longer have children.
That is not true,” Nekram says. Sexuality and fertility treatment
may be a sensitive subject but it is clear that Dr Tasiemski intends to
deal with the subject in a straightforward manner. As the head of
department, assistive technology, Nekram is keen to talk about the
various special devices available to assist the disabled to have
healthy sexual relationships.
Both
Dr Tasiemski and Nekram agree that perhaps the most important aspect of
the training will be to tackle community integration and socialisation.
Here the onus is not only on the wheelchair bound but also on the
public, particularly in India.
“In
the West, the wheelchair-bound people are accepted as part of the
society at large. But here they are either stared at or are
mollycoddled,” Nekram says. He knows, for he led 12
wheelchair-bound individuals into the popular TGIF restaurant at Saket
on Tuesday night. Even as they jostled around minding their own
business, people could not stop staring. But that’s not stopping
this motley crowd of unique individuals. Tomorrow they plan to have
lunch at Dilli Haat.