A
clinical diagnosis of Quadriplegia or Paraplegia isn't just a matter of
counting inert limbs. It's based on a cumulative score from multiple
sensory and Motor-skills tests. Robby Beckman, for example, is a
quadriplegic who can move his arms but has minimal hand control.
Likewise, Rummerfield is still classified as a Quad because there are
so many residual effects of his spinal cord injury. He chills easily,
is Prone to kidney stones, can't grip tightly with his right hand and
takes catnaps instead of restful sleeps. He's also numb below the knees
and has brittle bones.
Beckman couldn't tell Rummerfield was a
quadriplegic until Rummerfield told him. There are, however, subtle
clues. Lacking feeling in his lower legs, he moves with the
deliberateness of an older person. For all intents and purposes, he's
walking on knee-high stilts. Block his field of vision, and he's
helpless.
"If I try to carry a big box, I can't do it," Rummerfield says. "I fall down because I don't know where my feet are."
Running
accentuates those deficiencies. He has a sluggish, unbalanced stride
but can hold a steady, 12-minute-per-mile pace. Clearly, Rummerfield's
brain and nervous system are compensating in some way. Exactly how,
nobody knows. He says he looks and listens to his surroundings for
cues. Every step he takes is a conscious decision. Nothing is
instinctual. Acute spatial awareness might explain walking, possibly
running. But driving race cars?
"So far from normal, it's unbelievable," says Belegu. "It's crazy that he can do that."
"MR.
PAT DOESN'T KNOW IT YET, BUT I'M GOING TO BE HIS ASSISTANT WHEN I
GRADUATE," teases Beckman, continuing his march on the Hydro Track. He
lives with his parents in the Calvert County town of Owings, driving to
Kennedy Krieger and to classes at the University of Maryland
in a screaming-yellow, lift-equipped Chevy truck he nicknamed "Big
Cheddar." Beckman wears his hair in a boyish buzz cut, and there is a
mischievous Huck Finn quality about him that therapists love. As
Rummerfield notes, Beckman is also "a bundle of energy, full of
determination."
When
Kennedy Krieger opened its spinal cord injury center 2 1/2 years ago,
Beckman, now 24, was one of the first quadriplegics through the door.
The center specializes in children but serves adults in search of
intensive outpatient therapy. Back then, Beckman could barely roll over
on an exercise mat. But here he is, finishing a five-minute workout in
the Hydro Track.
"I'm like jelly right now," an exhausted Beckman sputters.
"You're looking good!" exclaims Rummerfield, patting him on the back.
In
the hallway outside is another patient, Elliott Farmer, a Paraplegic
only beginning his journey of recovery. He and Rummerfield talk almost
daily. Farmer, who's 19, fractured his neck in a 2006 car crash and
lost the use of his legs. He'd just finished his freshman year at the
University of Missouri. A few days after the accident, his father read
an article in the St. Louis Post-Dispatch about Rummerfield preparing
for a grueling endurance race: seven days of running 150 miles across
China's
Gobi Desert. That inspired Bud Farmer to bring his son to Kennedy
Krieger. He and wife Sandy fly with Elliott to Baltimore every few
months from their home in Jefferson City, Mo., for two weeks of
Physical Therapy.
According
to the National Institute of Neurological Disorders and Stroke, some
250,000 Americans have a debilitating spinal cord injury, and 12,000
new cases are added each year. A spinal injury essentially takes a
hammer to the body's delicate circuitry. Messages sent through the
Central Nervous System get garbled or misdelivered. The results can
cause terrible discomfort. Farmer dreads taking showers. Every drop of
water hitting him seems to have a jagged edge. The bolts of searing
Neuropathic Pain he sometimes feels are worse, like being struck by
lightning.
He recently was fitted with a fiberglass body brace.
It extends from his ankles to his sternum, with hinges at the knees and
hips. Farmer, in effect, is a crustacean, reliant on this external
skeleton to keep him upright whenever he gets out of his wheelchair.
He's learning to ambulate with crutches, navigating the corridor under
the guidance of therapist Mike Lagonera.
They must pause
periodically. Farmer's internal gyroscope is still out of whack. His
ears sometimes feel as if they're filling with water, a dizzying
sensation he refers to as "hearing the fan."
"It's because your blood pressure's down so low," Rummerfield tells him. "Whenever you first stand up, it shocks the system."
Rummerfield
has been through this body-brace phase, adding that it took him eight
months of Rehabilitation before he could stand without getting queasy.
Normal increments of time don't apply to spinal cord therapy.
Extraordinary patience is required. "You have to reeducate the body.
The process can wear you down," says Rummerfield. "You've got to look
at yourself like you're training for the Olympics."
Every day
Farmer tells himself, "I know I'm gonna walk." He believes it because
Rummerfield walks. For now, however, he would be content to have his
crutches carry him as far as the soda machine down the hall, a distance
of roughly 50 feet.
Farmer inches along, step by labored step.
Lagonera follows close behind. He's wearing a blue Kennedy Krieger
staff polo shirt. The back is emblazoned with a one-word motto printed
in bright, white letters in about a dozen languages.
Esperanca . . . Esper . . . Espoir . . . Hoop . . .
Hope.
Rummerfield
never made it through the Gobi. A freak rainstorm turned the desert
floor into leg-sucking goo; the struggle was compounded by 60 mph
sandstorms. After finishing the 27-mile opening stage, Rummerfield
dropped out with what X-rays later revealed were fractured ankles. He'd
thought they were just bad sprains.
Some of Rummerfield's
stoicism and iron determination comes from his childhood. He is a
native Californian. His birth name: Duke Stover, which sounds like the
hero of a 1920s young-adult novel. It was an abusive household. Duke's
arm was broken by his father when he was a toddler. All five Stover
children wound up in an orphanage in Boise, Idaho. They were placed with separate families and lost touch.
Duke
was adopted at age 7 and renamed Patrick by Tom Rummerfield, a
childless, gimpy-legged, middle-age divorc¿ who lived
outside the small mining town of Kellogg, about a half-hour from Coeur d'Alene in Idaho's northern panhandle.
Most
Kellogg men worked, and sometimes died, in the nearby lead and silver
mines. The town was full of rugged folk who knew hard times. Tom
Rummerfield had his adopted son actually sign a contract stating they
would care for each other till death. He was a proud, compassionate,
resourceful, somewhat eccentric coot -- a onetime amateur boxer turned
miner turned air-conditioning repairman who wrote poetry and hunted elk.
The
elder Rummerfield loved baseball and believed his boy was destined to
become a big league pitcher. Every day, he had Pat throw dozens of
balls through a tire slung from a backyard tree and jump rope to build
his legs. He regularly timed Pat in grade school as he ran a two-mile
stretch of hills behind their house.
"My dad used to tell me," Rummerfield recalls, "that the will to win means nothing without the will to work."
Childhood
buddy Mike Masters remembers Pat Rummerfield as "a scrapper." Wouldn't
back down from anything. Loved challenges and thrived on competition.
Six feet tall, Rummerfield could dunk a basketball and started at
forward for his high school team. He was an adept trash talker on the
court, so accomplished at it that an opposing coach once chased him
into the stands for running his mouth one too many times during a game.
The
Rummerfields belonged to the conservative Church of the Nazarene. Pat
considered himself a devout but "rebellious Christian." Speed was his
temptation. NASCAR drivers, not baseball players, became his idols.
After graduation, Rummerfield followed his friends into the mines, but
not with the intent of staying put. He planned to save some money, then
go race cars in Europe.
That dream died on September 20, 1974, with a squeal of tires and a spray of splintered glass.
Rummerfield
had been celebrating his 21st birthday the good ol' boy way: by
binge-drinking with best friend Kevin Berg. Rummerfield says they
downed two cases of beer and three bottles of apple wine. Berg then
capped off their evening by losing control of Rummerfield's 1964 Corvette at 135 mph.
The
driver stumbled away from the wreck with a chipped tooth. Rummerfield
was flung from the passenger's seat into the rear storage compartment.
He looked as if he'd been run through a wood chipper: scalp nearly
shorn off, face and head in need of 150 stitches, right eyeball popped
from its socket, one clavicle crushed, both knees hyperextended and,
worst of all, four neck Vertebrae fractured.
He was transported to Spokane,
Wash., for emergency surgery. Tom Rummerfield was given a bleak
prognosis for his son: Don't expect him to last more than 72 hours.
Pat, drifting in and out of consciousness, got drenched with the tears
streaming off his father's face. "I told my dad, 'I don't feel like I'm
gonna die.' He said, 'Well, they've got you pretty medicated.'"
Flat
on his back, as stiff as cement, Pat requested that an X-ray of his
neck be pinned above his bed where he could see it. He passed time
praying, over and over: Dear God, give me a second chance to live and walk again . . .