By Pauline ArrillagaThe Associated Press
May. 5, 2008
Editor's
note: Paralysis after a spinal cord injury brings wrenching decisions:
Do you accept it as permanent and adapt, or do you refuse to resign
yourself? John and Marci Pou took the latter course after his accident,
embarking on an arduous quest for
Rehabilitation, recounted in a
three-part serial narrative. Part I tells how the couple chose to
gamble on a different kind of therapy. First of three parts.
Since John Pou injured his spinal cord in 2005, he’s devoted himself to the goal of walking again.
|
| |
Denis Poroy / AP John Pou wheels past a parking space during an open house at Project Walk in Carlsbad, Calif., on Nov. 10, 2006. |
| |
 |
It was only a chair, but it had become his purgatory.
Each
day that John Pou spent in the wheelchair, his spirit seemed to die a
little more. It was a perpetual reminder of the calamity that had
brought him and Marci, even the kids, to this place.
The
chair stood for all that was lost: A promising career, a vigorous life
spent fishing the lakes of North Carolina, future plans conjured when
things were perfect — plans that seemed impossible now.
Their
home, too, felt like a taunting monument to John’s inadequacies:
The pool where he could no longer swim with Chase and Kacie, the front
door he couldn’t enter without a makeshift ramp for his
wheelchair.
That chair, affixed to him like an unwanted limb.
It
had been eight months since John shattered his C-5 vertebra diving over
a wave during a family vacation. Eight months spent in either a
hospital bed or that detestable chair.
Eight months, also, for Marci to hunt for the miracle that just might bring him and their family back from despair.
And now, staring at her laptop, she prayed she had found it.
On
the video, a quadriplegic was doing leg pushes on a Total Gym, riding a
stationary bike — walking, even, with support crutches in each
hand. His wheelchair was parked behind him.
Marci
clicked on another link and saw a paralyzed man lifting himself, while
grasping a bar, from a sitting position to standing.
John couldn’t even reach for a glass of tea without losing his balance and flopping forward in his chair.
“How are they doing that?” Marci thought.
She studied the clips again. Then again.
It
was an April night in 2006, and John was in bed with a urinary tract
infection — their latest taste of misery. But sitting at her
kitchen table, looking at videos of the clients at this
“recovery” center in California, Marci felt a trace of
optimism return.
“This is it,” she decided. “This is what we’re supposed to do.”
She
read about the program that promised added muscle mass, fewer health
problems, greater independence and restored function — all
through intensive exercise.
This place wasn’t about learning to live in the chair, but trying to get out of it. For good.
Even its name inspired hope: Project Walk.
“He could be one of those guys,” Marci thought. “He’s going to walk.”
For the first time since the accident, she had something to hold onto.
If only she could get John to grab hold of the dream, too.
Accept fate or fight back?
When
tragedy and life intersect, do you accept the hand you’re dealt
and adapt — or do you refuse to resign yourself to what may be
inevitable, despite what the doctors say and what your own demons
whisper?
In searching for answers, John
and Marci opened themselves, and their family story, to a reporter,
speaking freely over 18 months of interviews and sharing intimacies
— from journals and dinner-table debates to extensive medical
records.
This tumult was new for them. He
served in the Army during Desert Storm and was a 10-year veteran of the
Charlotte-Mecklenburg Police Department; she had worked 20 years at
Presbyterian Hospital in Charlotte, N.C. But she was an information
technology specialist, and he had never had to fire his weapon as a
policeman.
John Pou was a North Carolina
boy through and through, a daredevil who spent his younger days
hurtling over creeks on his motocross bike.
On
his first date with Marci, he pulled up in his ’78 Pontiac Trans
Am. A friend warned that Marci might think him a redneck. But Marci saw
something else: a quiet strength that would become the backbone of
their 13-year marriage.
“My angel,” she called John.
With
her sweet smile, Marci looked like the girl-next-door, but she was also
a tough-as-nails tomboy. She always wore a brave face through the worst
storms, including her own battles with lupus and rheumatoid arthritis.
“Don’t tell me I can’t,” she’d say.
Together,
John and Marci lived their lives by the Golden Rule. They were the kind
of folks who wouldn’t just lend a hand in times of trouble, but a
bed, a hot meal, a hug and prayers.
Then
came Aug. 22, 2005, and Chase sprinting across the sand to Marci at
Topsail Beach, their annual family vacation spot on the North Carolina
coast.
“Mommy! Mommy!” her 7-year-old said, “I think Daddy’s dying.”
Marci
had taken their 5-year-old daughter Kacie back to the motel to change.
Chase built sandcastles while John went for a swim.
Marci looked at her little boy. He shouldn’t cry wolf, she said. But Chase was insistent.
“No, Mamma!” he said, firmly grabbing her arm.
Marci looked down the beach and saw John on his back on the sand. She ran.
“Help me,” her husband mouthed, unable to speak.
John
never lost consciousness. Not in that awful moment when he dived over a
wave and felt his head hit the sand as though it were a stack of
bricks. Not in the moments after, when his body went limp and he feared
he would drown.
When the paramedics arrived, they put him in a neck brace on a backboard and asked: Can you move this? Can you feel this?
John
had broken his neck, crushing the fifth Cervical bone of the spinal
column. Doctors believed part of the shattered bone cut into his spinal
cord, leaving a Lesion along the bundle of nerves that carries impulses
to and from the brain and controls the body’s Motor and sensory
function.
In surgery the morning of Aug.
22, surgeons rebuilt John’s C-5 vertebra using bone from a donor
bank, then screwed a titanium plate from his C-4 vertebra to the C-7 to
keep the spinal column stable.
The next
day, the doctor delivered the diagnosis the couple expected. Once the
initial swelling subsided, John might regain some function, but
worst-case scenario: He would be paralyzed from the chest down, meaning
Quadriplegia, or loss of mobility in his legs and at least partial loss
of his arms.
He was 36 years old and had
been a 210-pound picture of health. He’d built his own barn on
the five acres where they lived in Iron Station, outside of Charlotte.
Now he couldn’t even pick up a hammer.
Their
life, their goals, had been simple: Marci, 39, was going to retire in
eight years, John not long after that. They’d thought about
starting their own business buying and fixing up homes. They planned on
growing old in their dream house, sitting around the fireplace on
holidays with grandchildren.
Instead,
rehabilitation became their life. They spent two months at the spinal
cord injury program at Shepherd Center in Atlanta, then another two at
a Veterans Administration hospital. The most basic living skills had to
be taught and relearned — how to brush teeth with hands that
didn’t work, how to eat using a wrist cuff and adaptive forks and
plates.
About a week into their stay at
Shepherd, John and Marci were brought to a conference room and listened
as John’s doctor explained his injury. Usually by this time, he
told them, the level of function you have is all you’re going to
get back.
John was in a power wheelchair, with a chest strap holding him in place. Yet the doctor was telling them: This is your life.
John
wondered how he would ever live like that. Marci simply refused to
believe it. Where were the options? She wasn’t hearing anything
about recovery. Only adapting, accepting and learning to live in the
chair.
They were given brochures about
adaptive equipment and a list of “possible activities,”
including billiards, board games, books on tape.
They arrived home with two loaner wheelchairs and no plan.
After
a few months, they tried an outpatient rehab center, where John rolled
up to an arm bike and worked out from the wheelchair. His legs went
neglected.
They
spent their days watching Chase and Kacie play baseball, taking them to
karate, going to church. Otherwise, John sat in his chair at home.
Marci
took to the Internet, reading anything that had to do with spinal cord
recovery. She subscribed to magazines like PN — Paraplegia News
— and scoured a regular feature called “Healing
Options,” which reviewed stem cell therapies, herbal medicine,
acupuncture, laser treatments.
It was there that she first read about Project Walk.