In 1995, actor Christopher Reeve fell off a horse and severely damaged his spinal cord, leaving him paralyzed from the neck down. From then until his death in October 2004, the silver screen Superman became the most famous face of spinal cord injury. But he was not alone. Every year, about 11,000 Americans experience a spinal cord injury, adding up to 200,000 people living with spinal cord injury disability in the United States.
A diagnosis of spinal cord injury can be devastating. The sudden presence of disability can be frightening, frustrating and confusing to trauma victims and their families and friends, who naturally wonder how this injury will affect their everyday activities, their jobs, their relationships, their dreams and their long-term happiness.
Accidents — motor vehicle accidents, falls and sports injuries — and acts of violence cause most injuries to the spinal cord. The injury interferes with your brain's ability to communicate through your nervous system with other parts of your body.
It's possible to retain all or nearly all sensation and movement after a spinal cord injury. Unfortunately, most trauma to the spinal cord causes permanent disability or loss of movement (paralysis) and sensation below the site of the injury. Paralysis can involve all four extremities, a condition called quadriplegia or tetraplegia, or only the lower body, resulting in paraplegia.
But there is good news. Christopher Reeve's celebrity and advocacy raised national interest, awareness and research funding for spinal cord injury. And exciting research developments occur regularly. Many scientists are optimistic that important advances will restore some function in people with a spinal cord injury within the next 10 years. In the meantime, many people with this disability continue to lead happy, active, independent lives. They are mothers and fathers, sports enthusiasts and respected employees. However, this doesn't happen without a team of health care professionals and a well-planned treatment regimen that may include medications, surgery, rehabilitation and counseling.
Signs and symptoms
The signs and symptoms of a spinal cord injury depend on two factors:
Spinal cord injuries of any kind may result in one or more of the following signs and symptoms:
Emergency signs and symptoms of spinal cord injury after a head injury or accident may include:
Causes
Together, your spinal cord and your brain make up your central nervous system, which controls most of the functions of your body. Your spinal cord runs approximately 15 to 17 inches from the base of your brain to your waist and is composed of long nerve fibers that carry messages to and from your brain. These nerve fibers feed into nerve roots that emerge between your vertebrae — the 33 bones that surround your spinal cord and make up your backbone. There, the nerve fibers organize into peripheral nerves that extend to the rest of your body.
A spinal cord injury may stem from a sudden, traumatic blow to your spine that fractures, dislocates, crushes or compresses one or more of your vertebrae. It may also result from a gunshot or knife wound that penetrates and cuts your spinal cord. Additional damage may occur over days or weeks because of bleeding, swelling, inflammation and fluid accumulation in and around your spinal cord.
This trauma and damage affects the nerve fibers passing through the injured area and may impair part or all of your corresponding muscles and nerves below the injury site. Spinal injuries occur most frequently in the neck (cervical) and lower back (thoracic and lumbar) areas. A thoracic or lumbar injury can affect leg, bowel and bladder control and sexual function. A cervical injury may affect breathing as well as movements of your upper and lower limbs.
The most common causes of spinal cord injury are:
Risk factors
Although a spinal cord injury is usually the result of an unexpected accident that can happen to anyone, some groups of people have a higher risk of sustaining a spinal cord injury. These include:
Spinal cord injury isn't always obvious. Numbness or paralysis may result immediately after a spinal cord injury or gradually as bleeding or swelling occurs in or around the spinal cord. In either case, the time between injury and treatment is a critical factor that can determine the extent of complications and the level of recovery.
Anyone who has experienced significant trauma to the head or neck needs immediate medical evaluation for the possibility of spinal cord injury. In fact, it's safest to assume that trauma victims have an unstable spine fracture until proved otherwise.
If you suspect a back or neck injury, don't move the injured person. Permanent paralysis and other serious complications may result.
Take these steps once you suspect someone has a spinal injury:
Screening and diagnosis
Paramedics and emergency workers are trained to treat people who have suffered a traumatic head or neck injury as if they have a spinal cord injury or an unstable spinal column, until a thorough screening and diagnosis can be completed. A key step in the initial treatment is immobilizing the spine.
Immobilizing the spine can prevent injury to the spine or prevent worsening of any injury that is already present. For this reason, emergency personnel receive training in handling an injured person without moving the neck and back. They use rigid collars around the injured person's neck and place the injured person on a rigid board, until a complete evaluation can take place.
In the emergency room, a doctor may be able to rule out spinal cord injury by carefully inspecting an injured person, testing for sensory function and movement, and asking some questions about the accident. But if the injured person complains of neck pain, isn't fully awake, or has obvious signs of weakness or neurologic injury, emergency diagnostic tests may be needed.
These tests may include:
If your doctor suspects a spinal cord injury, he or she may prescribe traction to immobilize your spine, as well as high doses of the corticosteroid drug methylprednisolone (Medrol). This drug significantly improves neurologic functioning by reducing nerve damage and decreasing inflammation — if given within eight hours of injury.
Diagnosis doesn't stop there, though. About three days after the injury, your doctor will conduct a neurologic exam to determine the severity of the injury and predict the likely extent of recovery. This may involve more X-rays, MRIs or more advanced imaging techniques.
It's often impossible for your doctor to make a precise prognosis right away. Recovery typically starts between a week and six months after injury if it occurs, with the majority of recovery taking place within one year. Doctors generally regard any impairment remaining after 12 to 24 months as likely to be permanent.
However, some people experience small improvements for up to two years or longer. At one point, Christopher Reeve made national headlines when he regained the ability to move his fingers and wrists and feel sensations more than five years after he was paralyzed in a horse accident. But many not-so-famous folks with a spinal cord injury have made similar strides away from the media spotlight. And doctors are rigorously researching ways to improve late recovery.
Complications
If you recently experienced a spinal cord injury, it might seem like every aspect of life just became a lot more complicated. After all, adapting to life with a disability — often in a wheelchair — is no easy task.
You'll likely experience many thoughts and emotions after injury. And you'll likely have concerns about how your injury will affect your lifestyle, your financial situation and your personal relationships. Grieving and emotional stress are normal and common. However, if your grief and sadness are affecting your personal care, causing you to isolate yourself from others, or prompting you to abuse alcohol or other drugs, it's time to seek help. People with a spinal cord injury abuse alcohol at about twice the rate that the general population does. Depression also is common.
Other complications of a spinal cord injury may include:
Fifty years ago, a spinal cord injury was usually fatal. Today, there's still no way to reverse damage to the spinal cord. But advances in recent years have improved the recovery of patients with a spinal cord injury and halved the amount of time survivors must spend in the hospital. Researchers are optimistically working on new treatments, including innovative prostheses and medications that may promote nerve cell regeneration or improve the function of the nerves that remain after a spinal cord injury.
In the meantime, treatment focuses on preventing further injury and enabling people with a spinal cord injury to return to an active and productive life within the limits of their disability. This requires urgent emergency attention and ongoing care.
Emergency actions
Urgent medical attention is critical to minimizing the long-term effects of any head or neck trauma. So treatment for a spinal cord injury often begins at the scene of the accident.
If you suffer a head or neck injury, you'll likely be treated by paramedics and emergency workers who will attend to three immediate concerns — maintaining your ability to breathe, keeping you from going into shock and immobilizing your neck to prevent further spinal cord damage. Emergency personnel typically immobilize the spine as gently and quickly as possible using a rigid neck collar and a rigid carrying board, which they'll use to transport you to the hospital.
In the emergency room, doctors focus on maintaining your blood pressure, breathing and neck stabilization and avoiding possible complications, such as stool or urine retention, respiratory or cardiovascular difficulty, and formation of deep vein blood clots in the extremities. You may be sedated so that you don't move and cause more damage while undergoing diagnostic tests for spinal cord injury.
If you do have a spinal cord injury, you'll usually be admitted to the intensive care unit for treatment. You may even be transferred to a regional spine injury center that has a team of neurosurgeons, orthopedic surgeons, spinal cord medicine specialists, psychologists, nurses, therapists and social workers with expertise in spinal cord injury.
In the early stages of paraplegia or quadriplegia, your doctor will treat the injury or disease that caused the loss of function. Immediate treatment may include:
Ongoing care
After the initial injury or disease stabilizes, doctors turn their attention to problems that may arise from immobilization, such as deconditioning, muscle contractures, bedsores, urinary infection and blood clots. Early care will likely include range-of-motion exercises for paralyzed limbs, help with your bladder and bowel functions, applications of skin lotion, and use of soft bed coverings or flotation mattresses, as well as frequently changing your position. Hospitalization can last from several days to several weeks, depending on the cause and extent of the paralysis and the progress of your therapy. But treatment doesn't stop when you check out of the hospital. Here are some of the ongoing treatments you can expect.
Rehabilitation. During your hospital stay, a rehabilitation team will work with you to improve your remaining muscle strength and to give you the greatest possible mobility and independence. Your team may include a physical therapist, occupational therapist, rehabilitation nurse, rehabilitation psychologist, social worker, nutritionist, recreation therapist and a doctor who specializes in physical medicine (physiatrist).
During the initial stages of rehabilitation, therapists usually emphasize regaining leg and arm strength, redeveloping fine motor skills and learning adaptive techniques to accomplish day-to-day tasks. A program typically includes exercise, as well as training on the medical devices you'll need to assist you, such as a wheelchair or equipment that can make it easier to fasten buttons or dial a telephone.
Therapy often begins in the hospital and continues for several weeks in a rehabilitation facility. As therapy continues, you and your family members will receive counseling and assistance on a wide range of topics, from dealing with urinary tract infections and skin care to modifying your home and car to accommodate your disability. Therapists will encourage you to resume your favorite hobbies, participate in athletic activities and return to the workplace, if possible. They'll even help determine what type of assistive equipment you'll need for these vocational and recreational activities and teach you how to use it.
Medications. You may benefit from medications that manage the signs, symptoms and complications of spinal cord injury. These include medications to control pain and muscle spasticity, as well as medications that can improve bladder control, bowel control and sexual functioning. You may also need short-term medications from time to time, such as antibiotics for urinary tract infections.
New technologies. Inventive medical devices can help people with a spinal cord injury become more independent and more mobile. Some apparatuses also may restore function. These include:
Following this advice may reduce your risk of a spinal cord injury:
An accident that results in paralysis is a life-changing event, whether you've lost movement in your legs and lower body or all four extremities. Recovery from such an event takes time, but many people who are paralyzed move on to lead productive and fulfilling lives. The will to live in humans is amazingly strong, and the creativity with which many affected people lead their lives is great. It's essential to stay motivated and get the support you need.
Grieving
If you're newly injured, you and your family will likely experience a period of mourning and grief that's similar to the period after the death of a loved one. Although the grieving process is different for everyone, it's common to experience denial or disbelief, then sadness, anger, bargaining, and, finally, acceptance. However, it may take up to a year to accept the reality of your disability.
The grieving process is a common, healthy part of your recovery. It's natural — and important — to grieve the loss of your old "normal" self. But it's also necessary to set new goals and find a way to move forward with your life.
Taking control
One of the best ways to regain control of your life is to educate yourself about your injury and your options for reclaiming an independent life. A wide range of driving equipment and vehicle modifications is on the market today. The same is true of home modification products. Ramps, wider doors, special sinks, grab bars and easy-to-turn doorknobs make it possible for you to assert your autonomy.
Because the costs of a spinal cord injury can be overwhelming, you may want to find out if you are eligible for economic assistance or support services from the state or federal government or from charitable organizations. Your rehabilitation team can help you identify resources in your area.
Talking about your disability
Your friends and family may respond to your disability in different ways. Some may be unfazed by your injury. Others may be uncomfortable and unsure if they are saying or doing the "right" thing. And some may have a difficult time adjusting to the change. They may grieve for the loss of the way your life was before the accident. They may be scared about the financial challenges and stress that are sure to arise. Or they may be nervous about their new role as caregiver.
Educating people about your disability is often the best solution. Children are naturally curious and sometimes adjust rather quickly if their questions are answered in a clear, straightforward way. Adults can also benefit from learning the facts. Explain the effects of your injury and what your family and friends can do to help. At the same time, don't hesitate to tell friends and loved ones when they're helping too much. Although it may be uncomfortable at first, talking about your injury often strengthens your relationships with family and friends.
Dealing with intimacy
Many men and women with a spinal cord injury wonder if they can maintain a romantic, intimate relationship with a partner. The answer is yes.
However, people with a spinal cord injury often need to address physical and emotional changes that can affect sexuality. You may need medical treatments or medications to have sexual intercourse. In some cases, intercourse may not be possible and you and your partner may need to explore and experiment with different ways to be romantic and intimate. A professional counselor can help couples communicate their needs and feelings so that they are more comfortable talking about sex and discovering what is fulfilling for both of them.
Taking care of yourself
As you adjust to your disability, allow yourself time to rest and time to process your thoughts and feelings about your disability. This is also a good time to concentrate on eating a healthy diet and reducing stress.
Good nutrition will help you build enough strength to fully participate in daily activities. A balanced diet will also help you fight infections and maintain proper body weight. Plus, it will help maintain regular bladder and bowel functioning and assist in preventing pressure ulcers.
Looking ahead
By nature, a spinal cord injury has a very sudden impact on your life and the lives of those closest to you. When you first hear your diagnosis, you may start making a mental list of all of the things you can't do anymore. However, as you learn more about your injury and your treatment options, you may be surprised at all of the things you can do.
Thanks to new technologies, treatments and devices, people with a spinal cord injury play basketball and participate in track meets. They paint and take photographs. They get married, raise children and have rewarding jobs.
Today, advances in stem cell research and nerve cell regeneration give hope for a greater recovery for people with a spinal cord injury. In addition, new medications such as 4-aminopyridine (Fampridine-SR) could be available in the next few years for people with long-standing spinal cord injuries. Although the final results from large-scale research studies of 4-aminopyridine aren't yet available, some early studies suggest that this medication can improve strength, spasticity, sexual function, and bladder and bowel function after spinal cord injury.
The reality of these new treatments is still a long way off. But you can remain hopeful about the future of spinal cord research, while living your life to the fullest today.
| October 11, 2004 |