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» Red Bull-backed Wings For Life Spinal Cord Research Foundation Comes To America
Published 09/25/2007 | September 2007 , Advocacy | Rating:
It happens every 41 minutes: somebody in the U.S. sustains a spinal cord injury. This epidemic, which affects more than 2.5 million people worldwide, including 300,000 Americans, has yet to become a focus of major medical study -- until now. Wings for Life Spinal Cord Research Foundation is a global charity dedicated to making spinal injury curable, and its U.S. debut is poised to make a major impact in the athletic community and beyond.

The foundation's goals are four-fold: (1) funding cutting edge scientific research aiming to heal spinal cord injury; (2) improving scientific communication in this specific field of research; (3) developing concrete, clinical intervention strategies and their potential applications; and (4) preventing spinal cord injuries.
» One of First Patients to Be Implanted with Cyberkinetics' Andara(TM) OFS(TM) System for Spinal Cord Injury to Meet with Members of Congress
Published 06/19/2007 | June 2007 , Advocacy | Unrated
Patient treated with Andara(TM) OFS(TM) Therapy for acute spinal cord injury will discuss his progress and the need to support promising new therapies for spinal cord injuries with U.S. legislators

Meeting is part of AdvaMed "Progress You Can See" event on Capitol Hill to raise awareness of advances in medical technology FOXBOROUGH, Mass.--(BUSINESS WIRE)--Cyberkinetics Neurotechnology Systems, Inc. (OTCBB: CYKN; "Cyberkinetics"; "Company"), a medical device company focused on developing novel implantable products to treat neurological diseases and injuries of the central nervous system, announced that the Company's Andara(TM) OFS(TM) Therapy for acute spinal cord injury has been selected for inclusion in the 2007 Advanced Medical Technology Association's ("AdvaMed") "Progress You Can See" events on Capitol Hill. Cyberkinetics is one of several companies that will be represented at the event by a physician and patient pair.
» Disabled activists descend on D.C.
Published 05/5/2007 | Advocacy , May 2007 | Unrated
A pair of handcuffs is tucked into one side of Daniese McMullin-Powell's wheelchair -- as always. She keeps a stash of about 150 pairs at home in case she needs to attach herself to a fence to hold her ground when others want her to yield.

She won't need the handcuffs in this protest, though. Her job will be more pedestrian, if you can say that about someone who gets 'most everywhere in a power chair.

» You don't need a cape to be a true superhero
Published 04/13/2007 | April 2007 , Advocacy | Unrated
Marc Buoniconti doesn't have the comic-book feel of a superhero: He has been a quadriplegic since fall 1985, when his spinal cord snapped while he was making a tackle playing football at The Citadel. He needs 24-hour care from a private nurse. He moves with the aid of a breath-activated wheelchair.

But he is a fortunate son in more ways than one. He inherited the Buoniconti tenacity from a father who was an undersized dynamo middle linebacker with the Miami Dolphins dynasty in the 1970s.
» Senators Home for Spring Recess – Stem Cell Vote in the Senate April 10th!
Published 04/2/2007 | Advocacy , April 2007 | Unrated
The Senate is scheduled to consider the Stem Cell Research Enhancement Act, S. 5 on April 10th – less than 2 weeks away!  Now is the ideal time to meet with your Senators – starting March 31st, Members of Congress will return home for a week-long recess.  This is the perfect time to contact your Senators while they are at home in your state, and let them know that this bill is important to you and why.   As their constituent, share your story and the hope of better treatments and potentially life-saving cures offered through stem cell research.  Tell them to vote YES on the Stem Cell Research Enhancement Act, S.5 and allow this promising research to go forward and help make your hope a reality.
» Paralyzed Veteran Wins $1.7 Million Landmark Veterans Affairs Claim- With Advocacy from Paralyzed Veterans of America
Published 03/20/2007 | Advocacy , March 2007 | Unrated
A 76-year-old veteran of the Korean War and Hurricane Katrina has been granted a $1.7 million claim by the Department of Veterans Affairs (VA) -- thanks to the can-do and caring advocacy of the Paralyzed Veterans of America (Paralyzed Veterans).

"This is great news for the veteran concerned and, perhaps, for thousands of other veterans like him," said Randy L. Pleva, Sr., national president of Paralyzed Veterans. "This win is also a great example of strong partnership in action: Paralyzed Veterans helping service members and veterans make their cases to the powers-that-be -- and the good folks at the Department of Veterans Affairs listening and doing something about it," Pleva said.

» Theatrical group fosters public awareness on disabilities
Published 03/20/2007 | March 2007 , Advocacy | Unrated
Close your eyes and enter a room, you hear a director yell out to a cast, “Move stage left, move forward, 5, 6, 7,8…!” You swear that you are at a rehearsal for the Chorus Line at the Repertory Theater, but when you open your eyes, what you imagined is different. The ensemble is the DisAbilty Project, which encompasses both disabled and able-bodied actors. The project exudes raw talent, creates a theatrical vision through word and movement and changes your perspective on life forever.

With like ambitions, Joan Lipkin, artistic director of That Uppity Theatre, and Fran Cohen, an occupational therapist both co-founded the DisAbility Project in 1996. They were intent in honoring stories told by people with disabilities, and turning those anecdotes into live theater. “I’m one of those people who always notices who’s not in the room,” Lipkin said.
» Handgun surcharge urged for research
Published 03/15/2007 | Advocacy , March 2007 | Unrated

MacArthur Williams was shot in Roxbury as he changed a tire on his Hyundai so he could go to work the next day. The man who shot him on that September night in 1989 was looking for revenge in a gang dispute, Williams said.

The gunshot paralyzed Williams, now a father of four living in Dorchester. Yesterday, he was among advocates and paralysis patients who urged state legislators to impose a $25 surcharge on all handgun purchases in Massachusetts to fund spinal cord injury research, so that one day he might walk again."

» AAPD to Present 2007 Henry B. Betts Award
Published 12/13/2006 | Advocacy , December 2006 | Unrated
The American Association of People with Disabilities (AAPD) is delighted to announce that the 2007 Henry B. Betts Award will be presented to Mark Johnson, a nationally-recognized activist, community organizer, and Director of Advocacy at the Shepherd Center in Atlanta, Georgia.

The Henry B. Betts Award is named in honor of Henry B. Betts, M.D., a pioneer in the field of rehabilitation medicine who started his career with the Institute in 1964, making it the base for his career as an advocate for people with physical disabilities and leader in the field of rehabilitation medicine, and who has devoted himself to improving the quality of life for people with disabilities. The award program, which is administered by AAPD, was created in 1989 by the Prince Charitable Trusts and the Rehabilitation Institute of Chicago.

» Stand Together to End Paralysis Now!
Published 09/30/2006 | September 2006 , Advocacy | Rating:
(TransWorldNews) Stand Together to End Paralysis Now – www.stepnow.org - a spinal cord injury global grassroots initiative launch their first worldwide campaign to urge governments to support and fund research that targets a cure for paralysis.

On October 4th 2006 paraplegics, quadriplegics and their families in 40 countries will participate in a global mailing, the first in a series of actions they hope will raise awareness of the devastation caused by a spinal cord injury, not only to the individual but also to family, highlighting all the ensuing health complications and most importantly the urgency for a cure.


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