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» Medical providers, learn about autonomic dysreflexia
Published 01/14/2008 | Knowledge , January 2008 | Rating:
Two consecutive nights, he was taken by ambulance to hospitals, but no one believed my son or myself when we told them what it was, and which doctor they needed to call.

Autonomic dysreflexia is a condition only seen in spinal cord injuries. Autonomic dysreflexia can develop suddenly, and is to be treated as an emergency situation.

If not treated promptly and correctly, it may lead to seizures, stroke, and even death.
» Spine Surgery - Timing matters!
Published 10/10/2007 | October 2007 , Knowledge | Rating:
According to the Spinal Cord Injury Information Network, about 40 people per 1 million in America will suffer a spinal cord injury. That equates to about 11,000 new spinal cord injuries a year. Since 2000, car accidents have been responsible for nearly 50 percent of spinal cord injuries.

THE DAMAGE DONE: Doctors say two types of injuries happen when someone suffers a spinal cord injury. First, there is damage done when the injury happens -- this is the initial impact and includes bruising, bleeding and disruption to the spinal cord and how it functions.
» Seattle radio show Patient Power to discuss " Advances in the Treatment of Spinal Cord Injuries"
Published 10/4/2007 | Knowledge , October 2007 | Rating:
This is a upcoming radio program/webcast from Patient Power with Andrew Schorr.  The guests, two medical experts in the field of spinal rehabilitation, will discuss "Advances in the Treatment of Spinal Injuries."  It will air live on  Sunday, October 7th at 10 a.m. Central time at www.kvi.com and on Seattle radio KVI AM 570. Listeners may e-mail questions ahead of time or call in to the live show.  Replays and transcripts will also be available at www.patientpower.info following Sunday's broadcast.
» An Oregon Tale
Published 03/27/2007 | March 2007 , Knowledge | Unrated
RECENTLY MY OLDEST son, Noah, graduated from the University of Oregon. He wore the traditional cap with tassel as a concession to his mother’s prodding. The gown, however, bothered him. Where the hell did the long flowing folds belong? He opted to go without, etiquette be damned. In its place he put on a bright pink shirt with striped tie. If you are going to draw attention, you may as well shine. As he proceeded forward amidst the other students draped in black, he glowed like an orchid in a bed of coal.

When the Provost announced Noah’s name, a loud cheer interrupted the decorum. The ovation celebrated an effort occurring parallel to the academics. These were his fans. They rightfully claimed a moment of brazen discourteousness. My resistance to the incessant urge for a feel good moment, about a story that has never felt very good, wavered. I allowed myself a smile.
» Elderly spinal cord injuries increase 5-fold in 30 years
Published 03/19/2007 | March 2007 , Knowledge | Unrated
The number of spinal cord injuries among senior citizens (age 70 and above) has increased five times in the past 30 years, as compared with younger spinal cord injury patients, researchers at Thomas Jefferson University Hospital and Jefferson's Regional Spinal Cord Injury Center of the Delaware Valley recently reported.

As the population within the United States ages, it is estimated that 20 percent of its population will be older than age 65 by the year 2040, and will likely impact spine surgeons and spinal cord rehabilitation centers as these patients become a larger proportion of the spinal cord injury (SCI) population. The findings were just presented by Jefferson neurological surgeons at a meeting in Phoenix, Ariz. of the Joint Section on Disorders of the Spine and Peripheral Nerves of the American Association of Neurological Surgeons.

» Fast and slow -- How the spinal cord controls the speed of movement
Published 02/28/2007 | February 2007 , Knowledge | Unrated
Cornell research may have implications for treating human

Using a state-of-the-art technique to map neurons in the spinal cord of a larval zebrafish, Cornell University scientists have found a surprising pattern of activity that regulates the speed of the fish’s movement. The research may have long-term implications for treating injured human spinal cords and Parkinson’s disease, where movements slow down and become erratic.

The study, "A Topographic Map of Recruitment in Spinal Cord," published in the March 1 issue of the journal Nature, maps how neurons in the bottom of the fish’s spinal cord become active during slow movements, while cells further up the spinal cord activate as movements speed up.

» 70% of Spinal Cord Injuries in Children Result from Motor Vehicle Accidents; Most Not Wearing Seatbelts
Published 02/14/2007 | February 2007 , Knowledge | Rating:
Of the nearly 1,500 spinal cord injuries (SCIs) sustained by children age 18 and younger every year, approximately 70 percent are a result of a motor vehicle accident. In 68 percent of those accidents, the child is not wearing a seatbelt. These findings—from one of the first studies to report on the incidence and causes of pediatric SCI—are authored by physician-scientists at Morgan Stanley Children's Hospital of NewYork-Presbyterian and Columbia University Medical Center, and published in a recent issue of the Journal of Pediatric Orthopedics.

Other common causes of pediatric SCI include accidental fall (14 percent), firearm injury (9 percent) and sports injury (7 percent). Alcohol and drugs were involved in 30 percent of all cases.

» Mayday May Publishes Via lulu.com Her Personal Letters Following a Sudden Spinal Cord Injury
Published 02/8/2007 | February 2007 , Knowledge | Unrated
Mayday May has published a collection of personal letters that detail life after spinal cord injury aptly titled Letters for Coping, Living, and Advocating after Spinal Cord Injury. The letters serve a duel purpose: to provide information and to be a template for the readers own advocacy efforts. Available for download at lulu.com.

Letters for Coping, Living, and Advocating After Spinal Cord Injury is one person's account of life after SCI told through correspondence to various people and agencies. The book provides templates for correspondence meant for SCI persons and their caregivers. It is intended as a quasi-memoir for those facing catastrophic injury or illness on how to navigate their new world.
» Professor Works to Increase Understanding of Spinal Cord Injuries
Published 10/4/2006 | Knowledge , October 2006 | Unrated
Every year about 11,000 people in the US suffer spinal cord injuries that will likely change their lives forever. More than half of these people are younger than 30. Today’s treatments can’t completely help the 250,000-400,000 people currently living with spinal cord injuries, but researchers at KU Medical Center’s Hoglund Brain Imaging Center are working to change that.

“Spinal cord injury is a major health and socio-economic problem,” said Mehmet Bilgen, PhD, director of high field magnetic resonance imaging research at the Hoglund Brain Imaging Center.
» Spinal patients body temp control difficult
Published 09/21/2006 | Cure Research , September 2006 , Knowledge | Rating:

PATIENTS with spinal cord injuries may be unable to maintain body temperature and heat while exercising in a cold or a warm environment, Dutch doctors warn in the International Journal of Sports Medicine.

Patients with spinal cord injuries have a disrupted nervous system "and may experience difficulties in temperature control during exercise at different ambient temperatures," said the researchers, from University Medical Center Nijmegen, based on the results of a study in which they had 11 spinal cord injury patients and 10 able-bodied controls perform arm-cranking exercises for 45 minutes in warm and cold air temperatures.



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